
http://www.nytimes.com/2013/05/19/opinion/sunday/disease-and-the-public-eye.html?pagewanted=all&_r=0
Disease and the Public Eye, NYT, 5/19/13
"I’ve spent a lot of time since my diagnosis wondering how we learn about certain diseases, and why some become part of the public conversation while others (like dystonia) do not. It’s odd to find yourself envying people who have diseases that get more attention than yours. But I can’t help it."
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