Struggles with treatment for non-Hodgkin's lymphoma, specifically DLBCL (diffuse large B-cell lymphoma) and surviving chemotherapy
Tuesday, January 25, 2022
Hair!
Friday, January 21, 2022
Comedian's death
Louie Anderson just died at 68, my age, of the same kind of lymphoma. This hits too close to home!
But I am feeling good, 5.6 months since my last chemo. I still have neuropathy in my toes, my appetite is still not great, but I won't have to get a haircut for months, maybe years, still!
https://www.reviewjournal.com/entertainment/entertainment-columns/kats/louie-anderson-comedy-icon-dies-in-las-vegas-2516839/
Thursday, January 6, 2022
Post-Evusheld
Two days later and I have had no side effects from Evusheld. Is that good? I think I asked this before or is this a deja vu?
My port is out but the area hurts and is purple. I read it can take a month to feel more normal.
Now I need to wait 2-4 weeks to feel protected. Which is it, 2 or 4?
Will the Leukemia & Lymphoma Society give me an antibody test in February?
I had a nasty nurse yell at me because I didn't follow her pre-sedation instructions for the port removal. In all the nursing care I have had, no one has come close to treating me this way, being so angry and humiliating. If I had treated a patron that way at the library, I would have been put on probation.
What was it to her if I couldn't get sedation or chose to reschedule?
I sent in a complaint about her.
Saturday, January 1, 2022
What is Evusheld?
Evusheld has a Wikipedia entry already!
Tixagevimab/cilgavimab is a combination of two human monoclonal antibodies, tixagevimab (AZD8895) and cilgavimab (AZD1061) targeted against the surface spike protein of SARS-CoV-2 used to prevent COVID-19. It is being developed by British-Swedish multinational pharmaceutical and biotechnology company AstraZeneca. It is co-packaged and given as two separate consecutive intramuscular injections (one injection per monoclonal antibody, given in immediate succession).
So instead of a mRna vaccine that encourages your body to form antibodies against the coronavirus, Evusheld is actual antibodies since your body can't form antibodies due to Rituxan.
It is approved by the FDA but it is still experimental. I just watched the documentary, "Cancer: the Emperor of All Maladies" and am left feeling almost all medicine is experimental. They know a lot more about cancer than in the early 1900s but there is still so much they don't know, like how to cure cancer. I am amazed they thought during LBJ's time as President that a cure was going to be found in ten years!